NeuroCONNECT
About
NeuroCONNECT is the Sydney Children's Hospitals Network registry for neurological disorders. It facilitates access to clinical and research expertise for difficult to diagnose conditions.
There are no additional diagnostic tests or interviews required to be part of the registry. Data is kept secure and private at all times. Being part of the registry will help connect the valuable data to the experts!
This project is proudly supported by The Ainsworth Foundation and the Sydney Children’s Hospitals Foundation.
Aim
NeuroCONNECT is a database that aims to collect data to improve diagnosis and create better models of care for children with neurological conditions.
Participating in the registry
Read the Participation Information Sheet
You will be able to find the information sheets online.
NeuroCONNECT Parent/Guardian Participation Information SheetNeuroCONNECT Child Participation Information Sheet
Provide consent on behalf of your child
It is important to know what it means to provide consent on behalf of your child. Sometimes this is called, a child's assent
You can provide e-consent online following the link below.
NeuroCONNECT online consent link
Ask questions
If you have questions, you may contact the project officer (see below), and they will schedule a meeting with you to discuss the registry.