News
Eight-month-old Bohdi is smiling again after becoming the first person in the world to benefit from a new treatment for a rare form of childhood epilepsy.
Adrian was just nine months old when he had his first life-threatening allergic reaction. For Adrian’s family, the ongoing risk of accidental exposure and cross-contamination led them to take part in a clinical trial designed to desensitise children with peanut allergy.
Highlighting the recent success of their researchers and partner institutes who have been awarded over $16.15 million in research grants.
The report, A Rare Kind of Care, examines the current landscape of rare disease policy in Australia, aimed at ensuring all living with a rare disease experience health equity.
A world-first clinical trial using a novel liquid biopsy has transformed the lives of children and young people with arteriovenous malformations (AVMs).
