News

Run your own race and find your cheerleaders along the way. That is the advice Melissa, mother of 18-year-old Lili, wants to share with the two million Australians impacted by rare diseases.

Dr Bhavna Padhye and Dr Rebecca Poulos have been awarded a joint fellowship to support a translational project for paediatric cancer.

They say knowledge is power, and a team of clinicians from our Network have set out to change the narrative around the treatment of FND and FS through the power of knowledge sharing.

A new RNA datatool aims to help patients with genetic diseases to receive a quicker diagnosis and improve their access to therapies.

The development of a world-first nasal spray vaccine could be a turning point in protection against whooping cough, helping stop the spread of the respiratory infection to vulnerable babies.