News

Steps are being taken by SCHN to improve equity of access and service management for those living with a rare disease via The Navigator Project.

Over $2 million in funding has been awarded by Luminesce Alliance to support the Providing Enhanced Access to Child Health Services Evaluation (PEACH-E) project.

A SCHN study investigated the outcomes of using parental and staff feedback to develop and evaluate the service of the ‘Difficult to Vaccinate’ clinical pathway.

More than $18.7 million in funding has been allocated to researchers across SCHN through the latest MRFF grant.

Run your own race and find your cheerleaders along the way. That is the advice Melissa, mother of 18-year-old Lili, wants to share with the two million Australians impacted by rare diseases.