About

The Standardising Orthopaedic Healthcare Outcomes (SOHO) registry is a significant research registry based at The Children's Hospital at Wesmead. The SOHO registry is a novel, digital, prospective, longitudinal registry that collects Patient- and Parent-Reported Outcomes (PROs) in children and adolescents with orthopaedic conditions that receive care at the hospital. It aims to give children and their families a louder voice in their own clinical care and in rigorous, high-quality clinical research. We provide a meaningful way that facilitates a shared-decision making process to assess orthopaedic surgery on individual and cohort levels that goes beyond the x-ray.

Up to 1,600 children with 15 different diagnoses are now actively participating in the SOHO registry. Ongoing PRO data is now available for up to 3 years in these children.

Research priorities

• Pain and function of children undergoing care for scoliosis of the spine, comparing the impact of bracing treatment and surgery.
• A multi-centre prospective randomised superiority trial of operative fixation versus non-operative treatment for medial epicondyle fractures of the humerus (SCIENCE)
• Collaboration in a global paediatric musculoskeletal trauma registry with complete follow-up of trauma patients from baseline to skeletal maturity (PedORTHO)
• Functional improvement after hip reconstruction in children with Mucopolysaccharidosis.
• Pain and Quality of Life in children following surgical intervention for recurrent patella dislocation.