Kids Neuro Trials
The Kids Neuro Trials team are a clinical trials unit within the Department of Neurology based at the Sydney Children’s Hospital, Randwick. Our team facilitates the whole research lifecycle for both industry and investigator led research and trials, offering expert and compassionate multidisciplinary care.
Objectives
- Increase the treatment options for children living with neurological, neurogenetic, neurodevelopmental and neuromuscular conditions.
- Integrate research into clinical care to achieve the best possible outcomes and quality of life for the kids, striving to provide a high-quality experience for both patients and their families.
Impact
- We are the lead Australian recruitment site for several trials including risdiplam for spinal muscular atrophy, treatments for Angelman Syndrome and Epilepsies.
- We have enabled access to cutting edge treatments for children with a wide range of conditions. These are including but not limited to, Angelman syndrome, motor neuron conditions (including spinal muscular atrophy), stroke, complex epilepsies, and tuberous sclerosis complex.
- We have integrated research into gold-standard care, with a multidisciplinary team that includes specialist neurology nurses and doctors.
Enquiries
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Kaitlyn Griffin
Biography
Team Manager. With a nursing and research background, Kaitlyn manages neurology clinical trials, striving to increase access to treatments for young patients. She is committed to advancing the understanding paediatric neurological conditions and treatment with compassion.
Related Links
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Dr Sandi Kariyawasam
Biography
Paediatric Neurologist, SCH. Lecturer at UNSW. Dr Kariyawasam's work has been translational in the domain of paediatric neuromuscular disease where she strives to improve health and psychosocial outcomes for affected children and their families.
Related Links
More team members
- Demren Toker - Trial Coordinator
- Dr Maeve Gillan - Neuro Clinical Trials Fellow
- Karen Herbert - Research Physiotherapist
- Eleanor Farley - Rare Disease Clinical Nurse Specialist (TSC, Kleefstra and Angelman Syndrome)
- Karlee McCann - Stroke Clinical Nurse Consultant
- Rosalie Tattersall - Clinical Nurse Specialist
- Lauren Bradbury - Clinical Nurse Specialist